Cayenne Wellness Center and Children's Foundation will debut 'Scar Stories: A Visual Testimony of Sickle Cell Warriors,' a new art exhibit beginning with an opening celebration on Friday, July 31, 2026, from 6:00 p.m. to 10:00 p.m., followed by the official opening on Saturday, August 1, 2026, at 10:00 a.m. The exhibit will be held at the Cayenne Wellness Center Sanctuary and Art Gallery at 216 S. Louise Street in Glendale, California, and will run through Sunday, December 6, 2026.
Sickle cell disease can lead to severe pain, repeated hospitalizations, surgeries, blood transfusions, organ failure, and other serious complications. The physical scars left behind often tell only part of the story; the emotional and personal impact may remain unseen. 'Scar Stories' brings those experiences into view through a powerful collection of portraits captured by photographer Heather Avant of Artfully Avant, whose striking visual storytelling highlights the scars, strength, vulnerability, and resilience of sickle cell warriors.
The portraits are paired with deeply personal narratives from participating sickle cell warriors, curated by Dr. Patrise Holden of The Language Key. These narratives invite the public to look beyond the physical scars and witness the lived experiences behind them. Attendees will also have the opportunity to purchase the companion book, which extends the exhibit through documentary photography and personal narratives. Thanks to Agios Pharmaceuticals, participants featured in the book will receive a complimentary copy.
'As the photographer and a warrior myself, Scar Stories is a true visualization of the aftermath of sickle cell disease on the human body. As warriors, we bear the scars of battle,' said Heather Avant. Dr. Carolyn Rowley, Executive Director of Cayenne Wellness Center and Children's Foundation, added, 'By documenting the physical scars and personal narratives of individuals living with sickle cell disease, this project transforms what is often hidden into a powerful visual testimony of survival, resilience, and strength.'
The opening celebration will bring together sickle cell warriors and their families, community members, health equity advocates, healthcare professionals, elected officials, and supporters for an evening of art, reflection, live music, food, and meaningful community connection. Invited speakers include Senator Sasha Renée Pérez, Mayor Barbara Lee of Oakland, Assembly Member Mike Gipson, Assembly Member Nick Schultz, and Mayor Ardy Kassakhian of Glendale.
Founded in 2000, Cayenne Wellness Center and Children's Foundation is a California-based 501(c)(3) nonprofit committed to improving the lives of individuals living with sickle cell disease. The organization provides expert, unbiased, and comprehensive care while promoting education for healthcare providers, patients, and the broader community. The exhibit is presented in collaboration with the Sickle Cell Community Consortium (SC3) and the Sickle Cell Disease Association of America (SCDAA).
For business and technology leaders, this exhibit underscores the importance of health equity and community engagement. The use of visual storytelling and digital documentation, including the companion book, highlights how technology can amplify patient voices and drive awareness. The partnership with Agios Pharmaceuticals also demonstrates how corporate support can enhance community health initiatives. More information and tickets are available at https://scarstoriesexhibit.com.
